Marianne Martinez
The PAN Foundation is a charitable patient advocacy organization that provides support and resources to people with life-threatening, chronic, or rare diseases, as well as their caregivers and family members. They offer assistance with prescription medication costs, information on clinical trials, and financial support through grants and disease funds. To access these resources, patients, caregivers, and healthcare professionals can create an account on the PAN portal at panapply.org. This allows them to apply for grants, join waitlists, and manage their personal information. PAN also offers additional tools such as FundFinder and TrialFinder to help users navigate financial assistance programs and relevant clinical trials.
| Characteristics | Values |
|---|---|
| Patient resources | FundFinder, TrialFinder, ComPANion Access Navigators, financial assistance options, guides, educational resources |
| Patient/caregiver account registration requirements | Patient name and date of birth, mailing address, email address, phone number, gender identity, race/ethnicity |
| Patient/caregiver account actions | Browse financial assistance programs, apply for grants, join wait lists, check grant information, update contact information, access messages |
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What You'll Learn
Registering for a PAN portal account
If you are new to PAN, click on "Register now" and fill out the account registration screens. You will need to provide the same details as listed above. Once registered, you can log in to your PAN portal account online 24/7. You can also call the contact centre on 1-866-316-7263, Monday through Friday, 9:00 a.m. to 5:30 p.m. ET, for any assistance.
Through your PAN portal account, you can access a variety of features. These include checking grant information such as balances, eligibility dates, claims status, and medication coverage. You can also update your contact information, sign up for disease fund wait lists, and quickly access important messages and PDF letters.
Additionally, the PAN portal allows you to verify your PAN details. To do this, go to the e-Filing portal homepage and click on "Verify Your PAN." On the next page, enter your PAN, full name, date of birth, and mobile number, and then click "Continue." On the Verification page, enter the 6-digit OTP received on your mobile and click "Validate." This will display your PAN status.
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Applying for grants and joining a wait list
The PAN Foundation provides a range of resources for patients with life-threatening, chronic, or rare diseases, including financial assistance for prescription medications and treatments. The PAN portal offers a convenient way for patients, caregivers, and healthcare professionals to manage their accounts, apply for grants, and join wait lists.
Applying for Grants
To apply for a grant through the PAN portal, patients or their caregivers can follow these steps:
- Visit the PAN portal login page at panapply.org.
- Log in to your existing account. If you don't have an account, click "Register Now" and complete the account registration process, providing the required information, such as name, date of birth, mailing address, email, and phone number.
- Once logged in, navigate to the “Patients” tab.
- Scroll to find a specific patient or select "Renewal Available" to review patients eligible for renewal.
- After locating the right patient, select "Renewal" under "Options Available."
- Review the renewal grant information and click "Continue."
- Confirm the accuracy of the current patient information and make any necessary updates.
- Check the box after each section to confirm the information's accuracy, then click "Next."
- Follow any additional instructions provided by PAN to complete the grant application process.
Joining a Wait List
Joining a wait list through the PAN portal can be beneficial to be among the first to apply for funding when it becomes available. Here's how to join a wait list:
- Log in to your PAN portal account.
- Find your disease fund on the PAN website and check your eligibility for the wait list.
- Confirm that all personal and demographic information listed is accurate, and update any changes.
- Select "Add to Wait List" at the bottom of the screen.
- You will receive an email outlining the next steps and notifying you when the wait list opens.
- Once the fund opens to those on the wait list, you will have two business days to submit your application.
- You can apply online by clicking the unique link provided in the email or by calling PAN.
It is important to note that signing up for the wait list does not guarantee eligibility for a grant. You must meet the eligibility criteria and apply within the specified wait list period to be considered for funding. Additionally, grants are awarded based on the order in which individuals joined the wait list, not the order of application submission.
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Lowering prescription costs
Prescription costs can be a significant burden, especially for those on low incomes or with chronic illnesses. There are, however, several ways to lower these costs and ensure that essential medications are affordable for all.
Firstly, it is important to explore the various financial assistance options available. These can include government programs, nonprofit initiatives, and private sector support. For instance, the PAN Foundation offers resources and links to help reduce prescription costs, including information on lower-cost prescriptions, discounts, and prescription assistance programs. They also provide tips such as suggesting generic medications, which can be significantly cheaper.
Additionally, the Medicare Prescription Payment Plan and Extra Help program can assist those with limited incomes and resources in managing their prescription costs. These programs can help cover Part D premiums, deductibles, and other expenses. It is worth noting that you can apply for Extra Help and Medicare Savings Programs simultaneously, and your state may initiate an MSP application for you. Even if you do not qualify for Extra Help initially, you can reapply if your financial circumstances change.
Another strategy to lower prescription costs is to increase price transparency and encourage competition. President Trump's administration, for instance, has taken steps to ensure that pharmaceutical manufacturers offer America, as the largest purchaser, a fair deal. This includes establishing direct purchasing mechanisms and bypassing middlemen to obtain "Most-Favored-Nation" pricing. Accelerating the approval of generics and biosimilars can also help drive down prices by increasing competition and providing more affordable alternatives.
Furthermore, clinical trials can provide an opportunity for patients to access potentially life-saving treatments at low or no cost. By participating in these trials, individuals can contribute to medical advancements while also benefiting from the latest innovations before they become widely available. PAN's TrialFinder site is a useful resource for locating relevant clinical trials.
Lastly, exploring international options can help lower prescription drug prices. By expanding access to lower-cost drugs imported from other countries, governments can drive down prices and ensure that patients have more affordable options. This strategy has been employed by the United States to reduce price disparities and provide American patients with a better deal.
In conclusion, there are a variety of approaches to lowering prescription costs, ranging from financial assistance programs to policy-level initiatives. By utilizing these options and advocating for increased price transparency and competition, we can make essential medications more accessible and affordable for those who need them.
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Finding clinical trials
Clinical trials are an important treatment option for people with pancreatic cancer. They are research studies that investigate new treatments or new combinations of treatments. These trials are necessary to determine whether new treatments are beneficial to people living with pancreatic cancer.
There are several ways to find clinical trials for pancreatic cancer. Here are some suggestions:
- Cancer Research UK publishes lists of clinical trials and their locations. The UK Clinical Trials Gateway is a database that uses information from researchers across the country and is another good place to start.
- Pancreatic Cancer UK has a trial finder tool on its website. This tool allows users to search for clinical trials they might be able to take part in. It also provides information about what is involved in each trial.
- PanCAN offers a free personalized information service on clinical trials and a comprehensive clinical trials booklet. PanCAN also maintains a database of pancreatic cancer clinical trials in the United States.
- The RareCan community has been steadily growing its membership of people with many different types of cancer, including pancreatic cancer. Signing up is free and easy, and by sharing your information, you can receive reports on trials that may be suitable for you.
- SWOG Clinical Trials Partnerships (SWOG CTP) designs and runs scientifically relevant industry-supported cancer clinical trials.
- Partnership for Accelerating Cancer Therapies (PACT) facilitates systematic and uniform clinical testing of biomarkers to advance understanding of the mechanisms of treatment response and resistance to immunotherapies.
It is important to discuss participation in clinical trials with your doctor or cancer specialist. They can refer you to a suitable trial or advise you if a trial is not right for you. They can also help you find a trial that is a better fit. Remember that applying for a trial does not guarantee acceptance, as trials often have specific patient groups they are targeting.
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Applying for Extra Help
The Patient Access Network (PAN) Foundation provides a range of resources and support services for patients, including the Extra Help program. This program is specifically designed to assist underinsured patients in obtaining the medication they require. It is important to note that Extra Help is not available in all regions, excluding Puerto Rico, the U.S. Virgin Islands, Guam, the Northern Mariana Islands, and American Samoa. However, individuals in these areas may still seek assistance through state Medicaid.
To apply for the Extra Help program, individuals can follow these steps:
- Eligibility Check: Before initiating the application process, it is essential to determine your eligibility for the Extra Help program. Visit Medicare.gov to assess your eligibility based on factors such as income, resources, and spousal income if applicable. It is worth noting that income limits are higher in Alaska and Hawaii. Additionally, working individuals or those supporting other family members may qualify for benefits even if their income exceeds the specified amounts.
- Gather Documents: The application process for Extra Help requires you to provide various financial documents. Collect information about your income, resources, and assets, which include money in checking, savings, or retirement accounts, as well as stocks and bonds. This process may seem overwhelming, but the program offers significant financial savings. PAN provides a helpful checklist to assist you in organizing the required documentation.
- Start the Application: You can access the Extra Help application through the Social Security Administration (SSA). Begin the online application on the SSA website, where you can fill out parts of the form, save your progress, and return to complete it at a later time. Family members, caregivers, or other third parties can also assist you in filling out the application.
- Submit the Application: After completing the application, submit it to the Social Security Administration for review. There is no requirement to provide proof of the information disclosed in the application. However, the data will be cross-referenced with other government agencies to ensure accuracy. Following your submission, the Social Security Administration will notify you within six weeks regarding your qualification for the Extra Help program.
- Explore Additional Resources: While the Extra Help program focuses on financial assistance, PAN recognizes that individuals may require further support beyond this. Additional resources, such as FundFinder, are available to help individuals navigate their healthcare journey. FundFinder is a free web application that enables users to track open disease funds across multiple charitable organizations, including PAN itself.
By following these steps, individuals can apply for the Extra Help program offered by the PAN Foundation. This program aims to assist underinsured patients in obtaining the necessary medication by providing financial support and resources.
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Frequently asked questions
You can visit the PAN portal at panapply.org to see all PAN partners.
PAN grants are available for patients with life-threatening, chronic, or rare diseases, as well as their family members and caregivers.
To apply for a PAN grant, you need to create an account on the PAN portal. Once logged in, go to the “Patients” tab and find the relevant patient. Then, under “Options available,” select “Renewal” and follow the instructions.
PAN offers a range of resources, including FundFinder, TrialFinder, and ComPANion Access Navigators, which provide personalized support and help with navigating clinical trials and financial assistance programs.
PAN provides guides and tips to help reduce prescription medication costs, including information on lower-cost prescriptions, discounts, and prescription assistance programs.
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